{"id":25050,"date":"2024-06-06T11:35:15","date_gmt":"2024-06-06T03:35:15","guid":{"rendered":"http:\/\/web.csh.org.tw\/web\/csh\/?p=25050"},"modified":"2024-06-06T11:45:52","modified_gmt":"2024-06-06T03:45:52","slug":"%e3%80%90%e6%96%b0%e8%81%9e%e3%80%911%e5%8a%914900%e8%90%ac-%e5%81%a5%e4%bf%9d%e7%b5%a6%e4%bb%98%e6%9c%80%e5%b0%8fsma%e7%bd%95%e7%97%85%e5%ac%b0%e6%96%bd%e6%89%93-%e8%bf%8e%e7%94%9f%e5%91%bd%e6%9b%99","status":"publish","type":"post","link":"https:\/\/web.csh.org.tw\/web\/csh\/?p=25050","title":{"rendered":"\u3010\u65b0\u805e\u30111\u52914900\u842c \u5065\u4fdd\u7d66\u4ed8\u6700\u5c0fSMA\u7f55\u75c5\u5b30\u65bd\u6253 \u8fce\u751f\u547d\u66d9\u5149"},"content":{"rendered":"\n<figure class=\"wp-block-image\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"600\" src=\"https:\/\/web.csh.org.tw\/web\/csh\/wp-content\/uploads\/2024\/06\/20240606.jpg\" alt=\"\" class=\"wp-image-25051\"\/><figcaption>\u674e\u82f1\u9f4a\u91ab\u5e2b\u5718\u968a\u7a4d\u6975\u6cbb\u7642\u8a72\u540d\u808c\u840e\u75c7\u7537\u5b30\uff0c\u4e26\u7533\u8acb\u5065\u4fdd\u7d66\u4ed8\u57fa\u56e0\u85e5\u7269\u3002\uff08\u8a18\u8005\u8521\u6dd1\u5a9b\u7ffb\u651d\uff09<\/figcaption><\/figure>\n\n\n\n<p class=\"has-medium-font-size\">\u3014\u8a18\u8005\u8521\u6dd1\u5a9b\uff0f\u53f0\u4e2d\u5831\u5c0e\u3015\u885b\u798f\u90e8\u5065\u4fdd\u7f72\u53bb\u5e748\u6708\u8d77\u7d66\u4ed8\u7f55\u75c5\u300c\u810a\u9ad3\u808c\u8089\u840e\u7e2e\u75c7\u300d\uff08SMA\uff09\u57fa\u56e0\u6cbb\u7642\u85e5\u7269\u300c\u8afe\u5065\u751f\uff08Zolgensma\uff09\u300d\uff0c\u4e00\u5291\u8cbb\u75284900\u842c\u5143\uff0c\u5275\u7d00\u9304\uff0c\u7e7c\u9996\u4f8b\u7d66\u4ed8\u5357\u90e8\u4e00\u540d\u672a\u6eff6\u500b\u6708\u5b30\u5152\uff0c\u518d\u50b3\u51fa\u7b2c2\u4f8b\u6cbb\u7642\u597d\u6d88\u606f\uff0c\u662f\u540d2\u500b\u591a\u6708\u5927\u7684\u7537\u5b30\uff0c\u808c\u8089\u529f\u80fd\u60e1\u5316\u5feb\u901f\uff0c\u5df2\u7d93\u7121\u6cd5\u9032\u98df\u4e14\u547c\u5438\u5598\uff0c\u6050\u6d3b\u4e0d\u904e2\u6b72\uff0c\u751a\u81f31\u6b72\uff0c\u4e0a\u500b\u6708\u521d\u6ce8\u5c04\u6cbb\u7642\u5f8c\u660e\u986f\u6539\u5584\uff0c\u4e5f\u662f\u5168\u53f0\u5065\u4fdd\u7d66\u4ed8\u5f8c\u6700\u5e74\u8f15\u65b0\u751f\u5152\u767c\u75c5\u810a\u9ad3\u808c\u8089\u840e\u7e2e\u75c7\u7b2c\u4e00\u578b\u6cbb\u7642\u7684\u6210\u529f\u6848\u4f8b\u3002<\/p>\n\n\n\n<p class=\"has-medium-font-size\">\u4e2d\u5c71\u91ab\u5b78\u5927\u5b78\u9644\u8a2d\u91ab\u9662\u5152\u7ae5\u795e\u7d93\u79d1\u4e3b\u4efb\u674e\u82f1\u9f4a\u6307\u51fa\uff0c\u9019\u540d\u7537\u5b30\u51fa\u751f\u5f8c10\u5929\u56e0\u65b0\u751f\u5152\u7be9\u6aa2\u7570\u5e38\u5c31\u91ab\u6642\uff0c\u817f\u90e8\u5df2\u7d93\u7121\u529b\u7121\u6cd5\u62ac\u8d77\uff0c\u6aa2\u67e5\u78ba\u8a3a\u7f79\u60a3\u810a\u9ad3\u6027\u808c\u8089\u840e\u7e2e\u75c7\u7b2c\u4e00\u578b\uff0c\u662f\u7f55\u898b\u4e14\u81f4\u547d\u7684\u795e\u7d93\u808c\u8089\u75be\u75c5\uff0c\u7acb\u523b\u70ba\u5979\u7533\u8acb\u5065\u4fdd\u7d66\u4ed8\u8afe\u5065\u751f\uff0c\u5e0c\u671b\u70ba\u4ed6\u5e36\u4f86\u4e00\u7dda\u751f\u6a5f\u3002<\/p>\n\n\n\n<p class=\"has-medium-font-size\">\u7537\u5b30\u5f8c\u7e8c\u808c\u8089\u840e\u7e2e\u75c7\u72c0\u6301\u7e8c\u60e1\u5316\uff0c\u80a2\u9ad4\u6301\u7e8c\u7121\u529b\uff0c\u624b\u8173\u5df2\u7d93\u7121\u63ee\u52d5\uff0c\u529f\u80fd\u5df2\u7d93\u9000\u5316\u5230\u7121\u6cd5\u9032\u98df\uff0c\u5fc5\u9808\u4ef0\u8cf4\u9f3b\u80c3\u7ba1\u559d\u5976\uff0c\u547c\u5438\u5598\u4fc3\uff0c\u5728\u51fa\u751f57\u5929\u5f8c\u6ce8\u5c04\u8afe\u5065\u751f\u6cbb\u7642\uff0c\u5f8c\u4f86\u75c5\u60c5\u672a\u518d\u60e1\u5316\uff0c\u808c\u8089\u529f\u80fd\u6539\u5584\uff0c\u547c\u5438\u548c\u541e\u56a5\u80fd\u529b\u4e5f\u9010\u6b65\u6062\u5fa9\u3002<\/p>\n\n\n\n<p class=\"has-medium-font-size\">\u674e\u82f1\u9f4a\u8aaa\uff0c\u7537\u5b30\u662f\u6700\u5e74\u8f15\u63a5\u53d7\u5065\u4fdd\u7d66\u4ed8\u8afe\u5065\u751f\u7684\u500b\u6848\uff0c\u51fa\u751f\u5c0f\u65bc2\u500b\u6708\u3001\u9ad4\u91cd\u50c5\u7d044000\u516c\u514b\uff0c\u6cbb\u7642\u5f8c\u75c7\u72c0\u6301\u7e8c\u6062\u5fa9\uff0c\u52a0\u4e0a\u85e5\u7269\u652f\u6301\u53ca\u5fa9\u5065\u652f\u6301\uff0c\u7537\u5b30\u6709\u671b\u7a69\u5b9a\u597d\u8f49\uff0c\u5c07\u4f86\u767c\u5c55\u5230\u80fd\u5750\u3001\u80fd\u722c\u968e\u6bb5\uff0c\u53ef\u518d\u9032\u4e00\u6b65\u8a55\u4f30\uff0c\u4ed6\u8aaa\uff0c\u8afe\u5065\u751f\u662f\u5f88\u65b0\u7684\u57fa\u56e0\u85e5\u7269\uff0c\u570b\u5916\u7814\u7a76\u5831\u544a\u6cbb\u7642\u52302\u6b72\u7684\u6210\u679c\uff0c\u56f0\u96e3\u75c5\u4f8b\u5df2\u7d93\u80fd\u5750\u8457\uff0c\u5e0c\u671b\u7121\u7aae\u3002<\/p>\n\n\n\n<p class=\"has-medium-font-size\">\u674e\u82f1\u9f4a\u6307\u51fa\uff0c\u810a\u9ad3\u6027\u808c\u8089\u840e\u7e2e\u75c7\u7b2c\u4e00\u578b\u901a\u5e38\u5728\u5b30\u5152\u671f\u767c\u75c5\uff0c\u5c0e\u81f4\u808c\u8089\u7121\u529b\u548c\u904b\u52d5\u529f\u80fd\u55aa\u5931\uff0c\u751a\u81f3\u5f71\u97ff\u547c\u5438\u548c\u541e\u56a5\u529f\u80fd\uff0c\u50b3\u7d71\u4e0a\uff0c\u8a72\u7b2c\u4e00\u578b\u7684\u6cbb\u7642\u9078\u64c7\u6709\u9650\uff0c\u60a3\u8005\u7684\u9810\u5f8c\u5f80\u5f80\u4e0d\u4f73\uff0c\u8afe\u5065\u751f\u662f\u8fd1\u5e74\u4f86\u5f15\u5165\u7684\u4e00\u7a2e\u57fa\u56e0\u7642\u6cd5\uff0c\u5c08\u9580\u91dd\u5c0d\u810a\u9ad3\u6027\u808c\u840e\u7e2e\u75c7\u60a3\u8005\u8a2d\u8a08\uff0c\u9032\u884c\u4e00\u6b21\u6027\u975c\u8108\u6ce8\u5c04\u66ff\u63db\u60a3\u8005\u9ad4\u5167\u7f3a\u5931\u6216\u6709\u7f3a\u9677\u7684SMN1\u57fa\u56e0\uff0c\u4ee5\u6062\u5fa9SMN\u86cb\u767d\u7684\u6b63\u5e38\u751f\u6210\uff0c\u9032\u800c\u6539\u5584\u795e\u7d93\u808c\u8089\u529f\u80fd\u3002<\/p>\n\n\n\n<p class=\"has-medium-font-size\">\u674e\u82f1\u9f4a\u8aaa\uff0c\u8a72\u6cbb\u7642\u57f7\u884c\u56f0\u96e3\uff0c\u5c24\u5176\u5c0d\u5e74\u9f61\u6975\u5c0f\u7684\u65b0\u751f\u5152\u60a3\u8005\uff0c\u7531\u65bc\u5b30\u5152\u9ad4\u91cd\u53ca\u8eab\u9ad4\u72c0\u6cc1\uff0c\u8abf\u6574\u85e5\u7269\u5291\u91cf\u53ca\u6ce8\u5c04\u56f0\u96e3\uff0c\u9019\u540d\u7537\u5b30\u6ce8\u5c04\u524d\uff0c\u85e5\u7269\u524d\u4e00\u5929\u624d\u525b\u5f9e\u7f8e\u570b\u9001\u5230\u53f0\u7063\uff0c\u6240\u5e78\u5728\u5718\u968a\u7684\u52aa\u529b\u4e0b\uff0c\u6210\u529f\u6cbb\u7642\u3002<\/p>\n\n\n\n<p style=\"font-size:3px\">&nbsp;<\/p>\n\n\n\n<p>\u76f8\u95dc\u5831\u5c0e\uff1a<a href=\"https:\/\/udn.com\/news\/story\/7266\/8008716\"><strong>\u806f\u5408\u65b0\u805e\u7db2<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.setn.com\/m\/news.aspx?newsid=1479597&amp;fbclid=iwzxh0bgnhzw0cmteaar2msohhno5ihtew-37mk-1r61j-u1uxtl3segyprcqb3q7ei_kubsk5mfu_aem_awhqtswfmoimzhvl-q1pxkxindusvzx8vlyqavyhkqlewxxvffo1zzb-anxx5v2n8wjihzkxqjqds94bcv5eypjx\"><strong>\u4e09\u7acb\u65b0\u805e\u7db2<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.ettoday.net\/news\/20240604\/2752006.htm?fbclid=IwZXh0bgNhZW0CMTEAAR0jBOBfUNVYlAruCfjoqRx4tb7nAvBdBXBqGUfuMDP1K_THq8GStFhZevY_aem_AWhi9-kpMVzHcc9l-LmQKq7hRAO4O3n_9NzJwcfMLVOzDD06lXTKjYN0Z-jVOtKD5td4LXjTrrWmPpH-CPsdM2SK\"><strong>ETTODAY<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/today.line.me\/tw\/v2\/article\/Vx3n9el\"><strong>LINE TODAY<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/tw.nextapple.com\/life\/20240605\/EBF79606F1E1C328FA6D8F3A7D3CDE4D\"><strong>\u58f9\u860b\u65b0\u805e\u7db2<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.mirrormedia.mg\/external\/setn_1479597\"><strong>\u93e1\u5468\u520a<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.top1health.com\/Article\/88\/94240\"><strong>\u83ef\u4eba\u5065\u5eb7\u7db2<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.peopo.org\/news\/687824\"><strong>PEOPO\u516c\u6c11\u65b0\u805e<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/bccnews.com.tw\/archives\/563172\"><strong>\u4e2d\u570b\u5ee3\u64ad\u516c\u53f8<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/tw.news.yahoo.com\/1%E5%8A%914900%E8%90%AC-sma%E7%BD%95%E7%97%85%E7%8D%B2%E5%81%A5%E4%BF%9D%E7%B5%A6%E4%BB%98%E6%96%BD%E6%89%93-57%E5%A4%A9%E6%96%B0%E7%94%9F%E5%85%92%E8%BF%8E%E7%94%9F%E5%91%BD%E6%9B%99%E5%85%89-042030563.html?guccounter=1&amp;guce_referrer=aHR0cHM6Ly93d3cuZ29vZ2xlLmNvbS8&amp;guce_referrer_sig=AQAAAJsNy1BMJiA9v-r3AbYbN43p_fKdTh01cwuGMqOvrWr0mabHHUrzZ4MCVJS77Q0eNCEyQgADvBkFzkscmZfogBprYdVGArLeoeHtLFSX3CwbhwLl6AJ7bZcKMzBXeUL97SfdSLWt5ebrc4MDA5PJxvM-525SjdvqoRLzCrNF6fvu\"><strong>Yahoo\u5947\u6469<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.watchmedia01.com\/enews-20240605030204.html\"><strong>\u89c0\u50b3\u5a92<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.taiwantimes.com.tw\/app-container\/app-content\/new\/new-content-detail?blogId=blog-3970d210-52e9-4b8c-b733-793d54c758d7&amp;currentCategory=11\"><strong>\u53f0\u7063\u6642\u5831<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/health.tvbs.com.tw\/medical\/347368?utm_source=health_app&amp;utm_medium=share\"><strong>\u5065\u5eb72.0<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.cdns.com.tw\/articles\/1024335\"><strong>\u4e2d\u83ef\u65b0\u805e\u96f2<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.cna.com.tw\/news\/ahel\/202406040247.aspx\"><strong>\u4e2d\u592e\u793e<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/www.u369.tw\/index.php\/news\/a1\/8148-zolgensma\"><strong>\u7db2\u8def\u793e\u5340\u5831<\/strong><\/a><strong>\u3001<\/strong><a href=\"https:\/\/macrocosm.tw\/%e6%96%b0%e7%94%9f%e5%85%92%e7%bd%b9%e8%87%b4%e5%91%bdsma-%e6%96%bd%e6%89%934900%e8%90%ac%e5%85%83%e5%9f%ba%e5%9b%a0%e9%87%9d%e5%8a%91%e6%b2%bb%e7%99%92-%e6%ad%a4%e6%98%82%e8%b2%b4%e8%97%a5%e7%89%a9\/\"><strong>\u5927\u5b87\u5b99\u65b0\u805e\uff0f\u6c11\u6642\u65b0\u805e<\/strong><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u3014\u8a18\u8005\u8521\u6dd1\u5a9b\uff0f\u53f0\u4e2d\u5831\u5c0e\u3015\u885b\u798f\u90e8\u5065\u4fdd\u7f72\u53bb\u5e748\u6708\u8d77\u7d66\u4ed8\u7f55\u75c5\u300c\u810a\u9ad3\u808c\u8089\u840e\u7e2e\u75c7\u300d\uff08SMA\uff09\u57fa\u56e0\u6cbb\u7642\u85e5\u7269\u300c\u8afe\u5065\u751f\uff08Zol [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"footnotes":""},"categories":[9],"tags":[],"class_list":["post-25050","post","type-post","status-publish","format-standard","hentry","category-9"],"_links":{"self":[{"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=\/wp\/v2\/posts\/25050"}],"collection":[{"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=25050"}],"version-history":[{"count":13,"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=\/wp\/v2\/posts\/25050\/revisions"}],"predecessor-version":[{"id":25064,"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=\/wp\/v2\/posts\/25050\/revisions\/25064"}],"wp:attachment":[{"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=25050"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=25050"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/web.csh.org.tw\/web\/csh\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=25050"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}